Weak Immune System

good  morning readers,

I have not been feeling too great.

About a month ago, I had the stomach bug for 5 days, and went to urgent care got fluids. Then a week later I had the same syptomns for 3 days. Then two weeks ago I had a burning pain in my stomach, waking me up at night it was awful. I went to urgent care, and they sent me in for a CT scan. 

The scan was normal.

A week ago Wednesday, the burning pain turned into neasous and vommitng. Ever since then I have barely kept any thing down, feel achy, weak and tired. On Friday, I went to urgent care and got fluids. I was told that if I had not kept any thing down  by the next day, to go the hospital. So on Saturday I went to the hospital from 8-1 and got fluids and  blood work. I was told it was viral. On Monday I was still throwing up so I went to my primary care, who didn't know what was going on so she sent me back to the GI. The gastroenologist believes it's viral but wants to do two procedures to make sure it's not some thing else. So on Tuesday I have to be sedated for a colonoscopy and endoscopy. 

So currently I am on day 8 of a stomach bug. Some days I am stay more positive than others. It's hard because I am used to go,go, going, and have been trapped In the house.

I don't know if I have a weak immune system and keep getting sick because of my HD, or if there is something else going on here. I'm more than ready for answers, ready to know. I am a little nervous about having the two procedures done but want to get them over with. I don't know what answer I want- don't want it to be viral because that means I have a weak immune system, but don't want some thing else to be wrong that  I have to deal with.

And there are many things that I have been looking forward to the next few days. I was planning on visiting my old school tomorrow for Halloween and seeing my old students and co- workers. Another thing I had been looking forward to for months is HDSA Education day, which is a mini convention in Boston. Then that night my cousin Chel and I were dog sitting at my sisters, and going out in Boston.

If your thoughts and prayers could be with me that I feel better tomorrow and Saturday I would greatly appreciate that.

I know today's post wasn't very positive but I had to get my frustrations out. thanks for baring with me!

As always thanks for reading,

Alex 

Exercise and Huntingtons Disease

Happy Friday!

I deeply and truly believe that excercise has been a huge factor in my happiness. I have been walking  30 minutes daily. Some days I walk with my mom, or my cousin Melissa and her kids,  or my cousins wife Katie and her babies. I try to walk everyday because I know just how good it is for me physically, mentally, and emotionally. There have been studies done that say a person with HD should excercise 30 minutes a day. It always lifts my spirits because it gets me outside in the fresh air. I also bought some cute new workout clothes, and my sister bought me new tennis shoes, and three new workout outfits -I can't get enough of them. :)

I have had some good chats with my mom, Katie, and Melissa when I walk with them and it makes the time go faster :) 

I am so grateful to have found something else that helps my HD.

Thanks for reading as I share my story.

Alex 

Be Brave

Hi readers,

Today I am encouraging you to be brave and fearless. When I first started my blog I had so many fears-I had to be brave, and jump anyway depsite my fears. I had always always wanted to have a blog, but it took the push from my sister to jump into it bravely and fearlessly.What is something that you have always wanted to do but haven't? I'm encouraging you, pushing you, and motivating you to jump bravely and fearlesly.

 It has been hard to share my journey, the good and the bad, of having Huntintgtons Disease with all of  you, but the feedback that I have received is worth the struggle. Do the hard thing, fight through the struggle- the outcome is so worth it, oh so good.

When I was considering doing the Boston Globe article I had a lot of anxiety and fears but once I committed to my decision to share my story with the world, I was estatic. My story was in the top ten most viewed the day it was released, and 111 people liked the link on the Boston Globes facebook page. The amount of awareness I raised was worth all those fears and anxieties.

My point is that in all of these situations I had fears and anxieties, and jumped anyways. You can do the same. It doesn't have to be  sharing your story of an abnormal disease, it just has to be something you want to do but have not because your fearfull.

 

Do something brave and fearless today- I can promise you the outcome is oh so worth the struggle. Do something hard, and jump!

Alexandra 

Florida Vacation

For the past 10 days, I was in Clearwater Beach, Florida. It's my home away from home. My parents, grandparents, aunts and uncles all have condos there! We have been going there twice a year for many years! It is my favorite place in the world to visit!

We had gorgeous and hot hot weather! There was a lot of beach days, lunches and dinners out, live music, happy hours, and sunsets- all of myf favorite favorite things!

There were many perfect and peaceful moments while I was on vacation- I feel as though I am really soaking in the good moments more and more lately!

I do want to point out how grateful that my family is able to go on vacation in Florida as much as we do-I know just how blessed I am, and am very thankful and appreciative.

It was a perfect 10 days- that vitamin D replenished my soul :)

As always thanks for reading,

Alex