HD Awareness month - Impossibly hard day, and a thank YOU to the reader

Happy May! Thank you for following this month, as I share the hard and the real of my journey in order to raise awareness for HD Awareness month. 

If I am being perfectly honest, I would have to say that yesterday was an impossibly hard day.  Physically, emotionally, and mentally it was exhausting. It was the hardest day that I have had so far; my movements were out of control, I needed assistance walking, and could barely sit still. Just an  all around physically hard day - which never helps me emotionally and mentally.  

However, I have figured out that the culprit was waaaay too much caffeine. I had three coffees from 9 am to 11am. Today I have not had any caffeine and feel 10 times better today. So I am going to cut out caffeine, and  hopefully I can have more days like today, and less days like  yesterday. Yesterday was scary, today I feel strong again.

I had an impossibly hard day yesterday, and then received this message from an old friend, and was reminded why I share my heart, and journey, why I fight the fight.  If I can inspire just ONE person, this blog is worth it. 

"I know we haven't talked in AGES and if my post made you uncomfortable I will definitely remove it-- I just haven't found the words to say to you to show my appreciation for sharing your story and bravery. I literally look for your post every day and look forward to hearing your positive attitude to brighten my day. You've impacted me more than you will ever know"
 
I have received so many messages similar to this. This blog is my happy place. My new favorite thing to do is blog - to share my heart with all of you. All of the views, emails, texts, facebook posts, and comments I have received melt my heart. I get through those impossibly hard days, with your help. I have hit 10,000 views in just a few weeks, and its alll because of  YOU. I have also  raised $1,335 for the HDSA. 

If you haven't yet, and would like to donate click here

Thank you, thank you, thank you,
Never alone,
Alex